Great post about the anthology for Sturge Weber from Yvette 😃
Twenty nine years ago, Christopher Campbell was born with Sturge-weber Syndrome. His parents were told their beautiful baby would not live past two years of age.
But Christopher defied the odds. Despite the seizures, despite the surgeries, and despite the pain, he has grown up. He leads a full life on the farm with his family. He is a black belt in karate. Helped by his loving parents and big family, his progress has been enabled no doubt by a great deal of love and support. It’s commendable he’s achieved so much and yet, the reality is he suffers multiple seizures, and endures regular surgical and medical procedures while the experts turn him into a human pincushion.
One of the problems faced by Christopher, his family, and other families in their position is that very little is known about Sturge-weber.
‘Sturge-Weber Syndrome is a rare brain disorder,’ said Robyn…
View original post 443 more words